Neurofibromatosis & Schwannomatosis: Sarah’s Journey

For more information about Cleveland Clinic's Neurofibromatosis Program, please visit https://cle.clinic/3NQi7Kz This year’s Neurofibromatosis Symposium offers patients and family members an opportunity to gain a better understanding of the management of neurofibromatosis and schwannomatosis. Living with neurofibromatosis can be challenging, but no one has to face it alone. In this inspiring conversation, NF1 patient advocate Sarah shares her lifelong journey with neurofibromatosis, including surgeries, chronic pain, MEK inhibitor treatment and the importance of finding the right care team and support system. Sarah also discusses the power of advocacy, community connection and hope for the future of NF research and treatment — offering encouragement to patients and families navigating their own NF journey. Like this video? Hit like and subscribe for more! #clevelandclinic #neurofibromatosis #schwannomatosis