Neurofibromatosis & Schwannomatosis: Jordan’s Journey

For more information about Cleveland Clinic's Neurofibromatosis Program, please visit https://cle.clinic/3NQi7Kz This year’s Neurofibromatosis Symposium offers patients and family members an opportunity to gain a better understanding of the management of neurofibromatosis and schwannomatosis. Living with NF2-related schwannomatosis can bring sudden and life-changing challenges, including hearing loss, vision loss and balance problems. In this powerful patient story, Jordan shares his journey adapting to life with NF2, navigating disability, rebuilding independence and finding hope through medical care, rehabilitation services and community support. Jordan also discusses the importance of seeking care early, advocating for yourself and learning how to adapt and move forward after diagnosis. Like this video? Hit like and subscribe for more! #clevelandclinic #neurofibromatosis #schwannomatosis