The Power of Youth Advocacy for Rare Disease Patients and Families

Speakers: - Ida Mirković Knaus, Expert Associate and Secretary of Rare Diseases Croatia; Vice- President, Croatian Neurofibromatosis Association - Yamina Hsaini, Activist & Advocate for Rare Diseases; Founder of “Yamina’s Life” This training is sponsored by Fondation Ipsen. This video was produced within the Evelyn Y. Davis studios. NPF is solely responsible for the content.