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Living with Rare Diseases and The Families Behind the Fight | Frontline 2026/2027 前线追踪 2026/2027 EP9

11.7K views· 86 likes· 23:58· Jun 15, 2026

Figures show that an estimated 2,000 to 3,000 people suffer from rare disorders in Singapore, of whom 700 are children. The Frontline team visits three families in Singapore whose children suffer from Wilson disease, Prader-Willi syndrome and campomelic dysplasia respectively. How do they confront the daily challenges head-on? What impact do such disorders have on the lives of patients and their families? 数据显示,本地有大约2000到3000人患有罕见疾病,当中约700人是孩童。《前线》摄制队走访本地三户家中孩子,小孩分别患有威尔逊疾病、普瑞德-威利综合症、肢体弯曲发育不良症 。他们每天如何勇敢应对疾病所带来的挑战?

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